Trials / Recruiting
RecruitingNCT05293184
The Global Angelman Syndrome Registry
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 5,000 (estimated)
- Sponsor
- Foundation for Angelman Syndrome Therapeutics, Australia · Academic / Other
- Sex
- All
- Age
- —
- Healthy volunteers
- Not accepted
Summary
The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome. The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | Observational study only |
Timeline
- Start date
- 2016-09-28
- Primary completion
- 2099-12-31
- Completion
- 2099-12-31
- First posted
- 2022-03-24
- Last updated
- 2024-02-23
Locations
1 site across 1 country: Australia
Source: ClinicalTrials.gov record NCT05293184. Inclusion in this directory is not an endorsement.