NCT05274555

Reliability and Validity of the Turkish Version of the Upper Limb Short Questionnaire in Duchenne Muscular Dystrophy

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 41 (actual)
• Sponsor: Dokuz Eylul University · Academic / Other
• Sex: Male
• Age: 5 Years – 18 Years
• Healthy volunteers: Not accepted

Summary

Purpose: This study aimed to evaluate the construct validity and reliability of the Turkish version of the Upper Limb Short Questionnaire (ULSQ) in Duchenne muscular dystrophy (DMD). Materials and methods: A total of 41 children with DMD have participated in the study. Upper and lower extremities functional levels were assessed with Vignos Scale and Brooke Upper Extremity Functional Rating Scale, respectively. The construct validity of the questionnaire was determined using the correlation between the ULSQ and ABILHAND-Kids. The Cronbach alpha value was calculated to determine internal consistency. To determine test-retest reliability, 17 randomly selected children were evaluated seven days after the first evaluation, and the "Intraclass Correlation Coefficient (ICC)" value was calculated.

Conditions

• Duchenne Muscular Dystrophy
• Upper Extremity Problem

Interventions

Type	Name	Description
OTHER	Assessment	The Upper Limb Short Questionnaire was administered by the researcher in face-to-face sessions with the children and their caregivers. The lower extremity functions and ambulation levels of the children were evaluated by the researcher using the Vignos Scale. The Brooke Upper Extremity Functional Rating Scale and ABILHAND-Kids were used to evaluate children's upper extremity functions.

Timeline

• Start date: 2019-03-27
• Primary completion: 2021-04-25
• Completion: 2021-06-29
• First posted: 2022-03-10
• Last updated: 2022-06-09

Locations

1 site across 1 country: Turkey (Türkiye)