Trials / Completed
CompletedNCT05268029
Making HD Voices Heard
Making HD Voices Heard - A Pilot Study on the myHDstory™ Platform
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 698 (actual)
- Sponsor
- Huntington Study Group · Network
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
The Pilot Study, Making HD Voices Heard, will ask people living with HD to report what they experience and how they function.
Detailed description
The Huntington Study Group (HSG) myHDstory™ Platform is an online, observational research platform that will host the Pilot Study, Making HD Voices Heard. The Pilot Study will ask people living with HD to report what they experience and how they function. Participants will provide self-reported information using their own compatible smartphones, laptops, desktops, or tablets. Participants will be asked to reply to a series of questions, including open-ended questions that will be transcribed by voice (microphone voice-to-text transcription) or keyboard-entered text to record what they experience in their own words.
Conditions
Timeline
- Start date
- 2022-03-23
- Primary completion
- 2023-10-11
- Completion
- 2023-10-11
- First posted
- 2022-03-07
- Last updated
- 2023-10-12
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT05268029. Inclusion in this directory is not an endorsement.