NCT05233189

Personalized Massive Online Open Course After Childhood Cancer

Personalized Massive Online Open Course After Childhood Cancer: Impact Study START-MOOC2

• Status: Active Not Recruiting
• Phase: N/A
• Study type: Interventional
• Enrollment: 532 (estimated)
• Sponsor: Centre Hospitalier Universitaire de Saint Etienne · Academic / Other
• Sex: All
• Age: 18 Years – 35 Years
• Healthy volunteers: Not accepted

Summary

Many studies have shown Childhood Cancer Survivors (CCS) are ill-informed about long-term follow-up (LTFU). Massive open online courses (MOOCs) could easily allow a deployment at an international level and make reliable information available for all CCS, wherever they live. The MOOC team (specialists of LTFU care, communication professionals and CCS associations), bringing together nearly 130 people, designed a MOOC named "Childhood Cancer, Living Well, After" including three modules addressing transversal issues (lifestyle, psychological support, fertility problems) and eight modules covering organ-specific problems.

Detailed description

Detailed data on childhood cancer treatments were used during a study of feasibility in spring 2020 to allocate specific modules to each participant. The aim of the present study is to quantify the impact of this MOOC on the CCS knowledge about LTFU adapted to their own medical history, but also to measure how this MOOC can improve the LTFU care of each CCS.

Conditions

• Long-Term Survivors

Interventions

Type	Name	Description
OTHER	MOOC	Registrants will be offered a personalized e-education consisting of 3 to 11 modules adapted to the treatment received in childhood by each in the form of a MOOC entitled "Cancer in childhood, living well after" over a total duration of about 3 to 7 weeks of training.
OTHER	No intervention	Patients will be followed up until 18 months only

Timeline

• Start date: 2024-04-30
• Primary completion: 2025-11-01
• Completion: 2025-11-01
• First posted: 2022-02-10
• Last updated: 2025-02-10

Locations

1 site across 1 country: France