Trials / Completed
CompletedNCT05103137
Post-transition Clinical and Socio-professional Future in Adult Patients With Recurrent Multifocal Chronic Osteitis
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 16 (actual)
- Sponsor
- Hospices Civils de Lyon · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
Chronic Recurrent Multifocal Osteomyelitis (CRMO) is a rare autoinflammatory bone disease in children. Studies evaluating the quality of life of patients with CRMO are small and heterogeneous. A better understanding of the impact of the disease on the quality of life of adult patients with CRMO beginning in childhood would allow better long-term management of these patients. Our study aims are to assess the clinical and socio-professional outcomes of adult patients who started CRMO at pediatric age.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | Questionnaire | Questionnaires concerning assesment of quality of life with 3 different questionnaires ( SF36, HAQ and pre-established questionnaire for the study) during a phone interview |
Timeline
- Start date
- 2020-10-08
- Primary completion
- 2020-11-10
- Completion
- 2020-11-10
- First posted
- 2021-11-02
- Last updated
- 2021-11-10
Locations
3 sites across 1 country: France
Source: ClinicalTrials.gov record NCT05103137. Inclusion in this directory is not an endorsement.