Trials / Recruiting
RecruitingNCT05052606
Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry
INSIGHTS Registry - Inspiring New Science In Guiding Healthcare in Turner Syndrome
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 5,000 (estimated)
- Sponsor
- University of Colorado, Denver · Academic / Other
- Sex
- Female
- Age
- —
- Healthy volunteers
- Not accepted
Summary
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | No intervention | This study is an observational study without treatment intervention. |
Timeline
- Start date
- 2020-05-20
- Primary completion
- 2025-10-01
- Completion
- 2025-10-01
- First posted
- 2021-09-22
- Last updated
- 2024-10-01
Locations
10 sites across 1 country: United States
Source: ClinicalTrials.gov record NCT05052606. Inclusion in this directory is not an endorsement.