NCT05035667

Patient Considerations of Social Media Account Management After Death

Social Media Use in Advanced Cancer: Patient Considerations of Social Media Account Management After Death

• Status: Active Not Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 117 (actual)
• Sponsor: M.D. Anderson Cancer Center · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

This study examines how supportive care clinic patients have made decisions or had discussions about how their caregivers or family should manage their social media account(s) after death. Collecting information on the use of social media and preferences will allow for a better understanding of patient's needs in the dying process and may identify populations in need of education, identify a possible source of anxiety and stress, and allow for an informed discussion of digital legacy.

Detailed description

PRIMARY OBJECTIVE: I. Identify the proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account (e.g. Facebook, Twitter, Instagram) management after death. SECONDARY OBJECTIVE: I. Identify the proportion of social media participation among advanced cancer patients seen in the supportive care clinic. II. Evaluate the baseline awareness advanced cancer patients seen in the supportive care clinic have regarding how their Facebook account may be managed after death. III. Evaluate affect changes and distress as a result from the conversation regarding their social media account management after death. IV. Evaluate if discussion of social media account management among patients with advanced cancer in the supportive cancer clinic will increase their awareness of and motivation to address their social media account management options. OUTLINE: Patients complete questionnaires over 30 minutes about level of anxiety and social media use and management.

Conditions

• Advanced Malignant Solid Neoplasm
• Hematopoietic and Lymphoid System Neoplasm

Interventions

Type	Name	Description
OTHER	Questionnaire Administration	Complete questionnaires

Timeline

• Start date: 2020-12-22
• Primary completion: 2026-12-31
• Completion: 2026-12-31
• First posted: 2021-09-05
• Last updated: 2026-04-16

Locations

1 site across 1 country: United States