NCT05022225

Psychosocial Reasons for Transfer to In Center Hemodialysis in Home Dialysis Patients- A Focus Group Study

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 35 (actual)
• Sponsor: Satellite Healthcare · Academic / Other
• Sex: All
• Age: 20 Years
• Healthy volunteers: Not accepted

Summary

Patients who start home dialysis take on an added responsibility and that can be challenging. The investigators are interested in studying the patient and care partner perspective on the challenges that the participants faced on home dialysis and what interventions could help support them better by holding focus group discussions.

Detailed description

Home dialysis has many advantages compared to in-center hemodialysis (ICHD) including better quality of life and lower healthcare costs. Transfer from home dialysis to ICHD is disruptive to the patients' lives and in some cases may be preventible. Patients do not infrequently transfer to ICHD due to psychosocial reasons, which may be multi-factorial and hard to capture. The aim of this study is to explore patients' and care partners' perspectives and experiences of the psychosocial factors that make home dialysis challenging and that ultimately contribute to transfer to ICHD during focus group discussions. The investigators will ask them to describe issues that may compound patient and care partner burnout; for those who have already transferred to hemodialysis, the investigators will specifically ask what factors contributed to their transfer off of home dialysis. the investigators will also ask for feedback on what interventions may have helped to prevent the transfer and/or burnout. * Understanding patient's perspectives and experiences will help the investigators improve patient experience and identify the gaps in health care delivery. * Help plan interventions and scale-out a solution to identify patients experiencing challenges that put them at risk of transfer to ICHD. * Lay the groundwork to develop surveys that can be used in the future. * To enable a truly patient-centered care model, understanding the issues in more detail is critical.

Conditions

• ESRD

Interventions

Type	Name	Description
OTHER	None. This is a qualitative interview study.	There is no intervention in this study. This is a qualitative research study where participants will take part in focus group discussions.

Timeline

• Start date: 2021-08-10
• Primary completion: 2022-01-31
• Completion: 2022-07-25
• First posted: 2021-08-26
• Last updated: 2022-07-26

Locations

1 site across 1 country: United States