Trials / Completed
CompletedNCT05006924
Symptoms and Outcome Measures for Upper- Limb Function in Myotonic Dystrophy Type 1
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 89 (actual)
- Sponsor
- Oslo University Hospital · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
Myotonic Dystrophy type 1 (DM1) is a multisystem disease that causes muscle weakness and myotonia. As a result upper limb function might become impaired. In this study we will examine patients with DM1 and record their upper limb function. We will will use a battery of patient reported outcomes (PROs) and Outcome measures (OMs) in order to evalute which ones are suitable for use in clinical practise and research studies.
Conditions
Timeline
- Start date
- 2021-12-10
- Primary completion
- 2024-08-31
- Completion
- 2024-08-31
- First posted
- 2021-08-16
- Last updated
- 2025-04-27
Locations
3 sites across 1 country: Norway
Source: ClinicalTrials.gov record NCT05006924. Inclusion in this directory is not an endorsement.