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Trials / Active Not Recruiting

Active Not RecruitingNCT04982393

BONAPH1DE, A Prospective Observational Study of Patients With Primary Hyperoxaluria Type 1 (PH1)

Status
Active Not Recruiting
Phase
Study type
Observational
Enrollment
207 (actual)
Sponsor
Alnylam Pharmaceuticals · Industry
Sex
All
Age
Healthy volunteers
Not accepted

Summary

The purpose of this study is to describe the natural history and progression of patients diagnosed with PH1, and to characterize the long-term real-world safety and effectiveness of lumasiran.

Conditions

Timeline

Start date
2021-12-13
Primary completion
2028-09-01
Completion
2028-09-01
First posted
2021-07-29
Last updated
2026-03-31

Locations

30 sites across 11 countries: United States, Belgium, Canada, France, Germany, Israel, Italy, Netherlands, Spain, Switzerland, United Kingdom

Source: ClinicalTrials.gov record NCT04982393. Inclusion in this directory is not an endorsement.