NCT04874519

Registry to Collect Health Information Related to Fibrolamellar Cancer

Fibrolamellar Carcinoma Global Dynamic Registry

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 12 (actual)
• Sponsor: Memorial Sloan Kettering Cancer Center · Academic / Other
• Sex: All
• Age: 13 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this study is to collect information about people with fibrolamellar cancer (FLC). This study is a registry of people with FLC around the world. This study will involve collecting information about participants, their medical history and the regular medical care they receive for FLC. The study will not provide treatment for your cancer.

Conditions

• Fibrolamellar Cancer
• FLC
• Liver Cancer

Interventions

Type	Name	Description
BEHAVIORAL	Questionnaire	The questionnaire will be completed at the time of enrollment, every month, and at the end of study. Regardless of current interventions or lack of, assessments will be completed at enrollment and then monthly for a total of 18 months. In order to provide reasonable flexibility to participants, physicians, and study teams, the assessments can be completed within 30 days of the last assessment. The next month will be recalculated based on last reporting date.

Timeline

• Start date: 2021-11-24
• Primary completion: 2025-11-10
• Completion: 2025-11-10
• First posted: 2021-05-05
• Last updated: 2025-11-12

Locations

1 site across 1 country: United States