NCT04820998

Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care

Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care: Qualitative Study - Monocentric Study

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 45 (actual)
• Sponsor: Centre Hospitalier Universitaire de Saint Etienne · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

Study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in the various social spaces and improve collaboration between professionals and parents

Detailed description

Identify the living conditions related to the housing of children with autism spectrum disorders (ASD) treated at the Léo Kanner Center (CLK), psychopathology department of the Saint-Étienne University Hospital. The aim is to describe through the trajectories of children with ASD and their families, their living conditions, and through interviews with professionals who support them, how the specificities related to precarious situations are identified and taken into account. A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat. The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.

Conditions

• Autistic Disorder

Interventions

Type	Name	Description
OTHER	Families	Families's interviews about their precarious situation of living and the consequences on their autistic child care
OTHER	professionals	Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals

Timeline

• Start date: 2021-09-01
• Primary completion: 2022-04-01
• Completion: 2023-01-01
• First posted: 2021-03-29
• Last updated: 2023-07-10

Locations

1 site across 1 country: France