NCT04819191

Improving Communication for Primary Care Patients

Improving Communication for Primary Care Patients (SHARING Choices)

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 64,915 (actual)
• Sponsor: Johns Hopkins University · Academic / Other
• Sex: All
• Age: 65 Years
• Healthy volunteers: Accepted

Summary

This is a pragmatic trial of SHARING Choices. Components of SHARING Choices include: 1. A letter from the clinic introducing an initiative to prepare persons and families for Advance Care Planning (ACP); 2. Access to a facilitator trained to lead ACP discussions; 3. Patient-family agenda-setting to align perspectives about the role of family and stimulate discussion about ACP; 4. Facilitated registration to the patient portal (for patient and family) as desired; 5. Education \& resources about Alzheimer's Disease and Related Dementias (ADRD) for clinic staff.

Detailed description

Engaging family in primary care is particularly important in Alzheimer's Disease and Related Dementias (ADRD) because of the important role assumed in medical decision-making, especially at the end of life. The investigators, study seeks to improve communication in primary care through methods to proactively engage family in ongoing interactions with primary care and stimulate and support Advance Care Planning (ACP) for all older adults and attention to ADRD in primary care throughout the ADRD disease trajectory. The investigators' premise is that individuals and families appreciate primary care involvement in ACP and information and referrals for ADRD needs, but that individual, family, and system factors including time, knowledge, and resources often inhibit these conversations from occurring. SHARING Choices integrates communication strategies that have been individually found to be effective but have thus far been deployed in isolation of one another. The investigators focus on all older primary care patients because of the importance of addressing ACP early, the under-diagnosis of ADRD and the greater implementation potential of a protocol with broad applicability. Components of SHARING Choices include: 1. A letter from the clinic introducing an initiative to prepare persons and families for Advance Care Planning (ACP); 2. Access to a facilitator trained to lead ACP discussions; 3. Patient-family agenda-setting to align perspectives about the role of family and stimulate discussion about ACP; 4. Facilitated registration to the patient portal (for patient and family) as desired; 5. Education \& resources about ADRD for clinic staff.

Conditions

• Advance Care Planning
• Dementia

Interventions

Type	Name	Description
BEHAVIORAL	SHARING Choices	SHARING Choices is a multicomponent communication intervention to proactively engage family members or friends and to support advance care planning in primary care

Timeline

• Start date: 2021-03-01
• Primary completion: 2023-11-20
• Completion: 2023-11-20
• First posted: 2021-03-26
• Last updated: 2025-03-03
• Results posted: 2025-03-03

Locations

54 sites across 1 country: United States