NCT04769843

Impact of Swallowing Impairment on Individuals With Parkinson Disease

Incorporating the Psychological Consequences of Dysphagia Into Swallowing Care: A Preliminary Investigation

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 25 (actual)
• Sponsor: Northern Arizona University · Academic / Other
• Sex: All
• Age: 18 Years – 100 Years
• Healthy volunteers: Not accepted

Summary

In this online study, investigators will explore the psychosocial burdens of swallowing difficulties in people with Parkinson's Disease. This study is completely virtual, so you can participate from wherever you live in the United States. Participation requires you to complete a one-hour Zoom interview and a brief questionnaire. You will be compensated with a $25 Walmart gift card. To learn more, please use the "send email" feature. Thank you!

Detailed description

This is a mixed methods study. The investigators will collect qualitative data from participants by conducting 1-2 hour semi-structured interviews on Zoom. The interview questions are designed to systemically inquire about patient experiences, affective reactions, coping strategies, social support, self-identity issues, and treatment experiences. The investigators will collect quantitative data by asking participants to complete The Brief Illness Perception Questionnaire. The data will be analyzed using a comprehensive stress and coping model, which has not been done previously in the field. The investigators hope to discover themes about psychosocial burdens and related coping mechanisms.

Conditions

• Parkinson Disease
• Dysphagia

Timeline

• Start date: 2021-03-24
• Primary completion: 2021-12-31
• Completion: 2021-12-31
• First posted: 2021-02-25
• Last updated: 2022-01-27

Locations

1 site across 1 country: United States