NCT04704193

Development and Implementation of Electronic Decision Aids for Genetic Testing in Inherited Cancer Syndromes

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 93 (actual)
• Sponsor: Massachusetts General Hospital · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

An electronic decision aid will be used to assist individuals in choosing a multi-gene panel with their medical oncologist instead of a genetic counselor. A decision aid may facilitate quality decisions around the selection of a specific multi-gene panel without a genetic counselor. Upon completion of the decision aid, participants will be asked to indicate their decision about whether to pursue genetic testing and which specific multi-gene panel to pursue. A survey will then be administered to assess participants' opinions on the decision aid.

Conditions

• Genetic Testing

Interventions

Type	Name	Description
OTHER	Survey of Decision Aid	The decision aid will be evaluated by a survey administered to those who have used the tool.

Timeline

• Start date: 2020-11-20
• Primary completion: 2023-12-31
• Completion: 2023-12-31
• First posted: 2021-01-11
• Last updated: 2024-08-13
• Results posted: 2024-08-13

Locations

1 site across 1 country: United States