NCT04665674

Adult Pulmonary Langerhans Cell Histiocytosis: a National Registry-based Prospective Cohort Study

Enquête épidémiologique Sur la prévalence et le Pronostic de l'Histiocytose Langerhansienne Pulmonaire de l'Adulte en France

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 500 (estimated)
• Sponsor: Assistance Publique - Hôpitaux de Paris · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The long-term outcomes of adult patients with pulmonary Langerhans cell histiocytosis (PLCH), particularly survival, is largely unknown. This is the first prospective study in the field evaluating the long-term outcomes of PLCH patients. This french countrywide registry-based study included a large cohort of PLCH patients followed for a sufficiently long period to address risk factors of long-term outcomes of PLCH patients.

Conditions

• Histiocytosis
• Histiocytosis, Langerhans-Cell
• Histiocytosis Pulmonary

Interventions

Type	Name	Description
OTHER	Standard of care	Standard of car of pulmonary Langerhans cell histiocytosis (PLCH)

Timeline

• Start date: 2004-01-01
• Primary completion: 2034-12-31
• Completion: 2035-12-31
• First posted: 2020-12-11
• Last updated: 2020-12-17

Locations

1 site across 1 country: France