NCT04592224

Cancer Information Your Way: Get What You Need to Make Your Decisions

Cancer Information Your Way: Get What You Need to Make Your Decisions - a Qualitative Study of Decision Making by Patients With Lower Health Literacy Receiving Care for Incurable Cancer

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 21 (actual)
• Sponsor: University of Southampton · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

People diagnosed with cancer may face many difficult decisions regarding their care and preferences. This may be particularly challenging when the cancer cannot be cured. It is therefore hugely important that patients have the information they need so that they can be involved in these decisions and in their care. This qualitative interview study aims to hear from patients who might have found that the information they were given wasn't easy to understand, or who haven't been able to get involved in their care as much as they would have liked. We hope to learn from these experiences in order to improve the way patients are given information and supported to become involved in their care.

Detailed description

Participants will be identified by healthcare professionals and invited to take part in a single interview either by phone or video call, lasting around an hour. Interviews will be semi-structured and follow a topic guide, exploring how participants have been given information, how decisions have been made, and any particular challenges they may have faced. Consent will also be sought for collection of demographic and disease data from the participant's medical record

Conditions

• Cancer

Timeline

• Start date: 2020-11-12
• Primary completion: 2021-11-30
• Completion: 2021-11-30
• First posted: 2020-10-19
• Last updated: 2022-07-20

Locations

1 site across 1 country: United Kingdom