NCT04586127

Improving Care Coordination for Adolescents and Young Adults With Cancer

Improving Care Coordination for Adolescents and Young Adults With Cancer: Implementing a Bridge Between Needs and Services

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 26 (actual)
• Sponsor: Wake Forest University Health Sciences · Academic / Other
• Sex: All
• Age: 18 Years – 39 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this research is to test an intervention designed to identify cancer needs and connect patients with services that address those needs. Participation in this research will involve completing 2 online surveys over the course of 1 month; each should take about 15 minutes to complete.

Detailed description

Adolescents and young Adults (AYA) Needs Assessment \& Service Bridge (AYA NA-SB) includes a holistic Patient Reported Outcome Measures (PROM) assessing AYAs' physical, psychosocial and practical needs and a collection of referral pathways for connecting AYAs to services and resources based on the needs they report. To assess the implementation of AYA NA-SB, the study team will pilot AYA NA-SB in the North Carolina Cancer Hospital (NCCH)/ UNC Children's Hospital, with a primary focus on implementation outcomes (i.e., feasibility, acceptability, appropriateness, fidelity). To establish proof-of-concept for AYA NA-SB, the study team will use pilot data to generate preliminary evidence on the extent to which AYA NA-SB addresses AYAs' reported needs.

Conditions

• Cancer

Interventions

Type	Name	Description
OTHER	AYA NA-SB Questionnaire	Questionnaire identifying cancer needs so that providers can connect subjects with services that might address them.

Timeline

• Start date: 2021-06-15
• Primary completion: 2022-08-26
• Completion: 2022-08-26
• First posted: 2020-10-14
• Last updated: 2024-01-12
• Results posted: 2024-01-12

Locations

1 site across 1 country: United States