Trials / Active Not Recruiting
Active Not RecruitingNCT04378855
Patient-Reported Outcomes in PHiladelphia-nEgative Cytogenetic mYeloproliferative Neoplasms (PROPHECY).
Patient-Reported Outcomes in PHiladelphia-nEgative Cytogenetic mYeloproliferative Neoplasms (PROPHECY): A GIMEMA Observational Registry for Italian MPN Patients
- Status
- Active Not Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 572 (actual)
- Sponsor
- Gruppo Italiano Malattie EMatologiche dell'Adulto · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
This study will ultimately aim at developing a GIMEMA platform for collecting HRQoL and symptom burden information on Italian patients with Philadelphia chromosome negative MPN. The main objective of the protocol is to improve our understanding of the impact of the disease and various treatments on patients-wellbeing, symptom burden and daily functioning.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | Questionnaire | Quality of life assessment |
Timeline
- Start date
- 2020-05-29
- Primary completion
- 2023-11-15
- Completion
- 2025-11-15
- First posted
- 2020-05-07
- Last updated
- 2025-09-23
Locations
25 sites across 1 country: Italy
Source: ClinicalTrials.gov record NCT04378855. Inclusion in this directory is not an endorsement.