NCT04254718

Digital Storytelling in the NICU

Preliminary Pilot Study of Digital Storytelling in the NICU

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 6 (actual)
• Sponsor: Vanderbilt University · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

Our long-term goal is to reduce suffering and long-term negative consequences for families in the Neonatal Intensive Care Unit (NICU). The overall purpose of this study is to test feasibility of a legacy intervention for NICU parents.

Detailed description

Specific aims are: (1) To determine the feasibility of a legacy intervention for NICU parents; and (2) to determine the feasibility of psychosocial instruments for NICU parents. We will recruit parents (N = 12) of 6 infants in the NICU who have received a palliative care consultation and expected to die by 1 year of age based on provider report. We will use a one-group pre- and post-test design. The intervention will be delivered by the PI or trained study staff conducting video-taped interviews with parents in private NICU rooms to create a digital story about their infant. The videographer will use the video and music selected by parents to create a digital story about the infant. The final digital story is provided to parents on a DVD or unlisted (private) YouTube link to keep. Parents will complete electronic psychosocial measures at enrollment (baseline/pre-intervention) and post-intervention.

Conditions

• Bereavement

Interventions

Type	Name	Description
BEHAVIORAL	Digital Storytelling	Creation of a digital story about the infant with video and music selected by parents

Timeline

• Start date: 2020-10-12
• Primary completion: 2021-06-30
• Completion: 2021-06-30
• First posted: 2020-02-05
• Last updated: 2021-09-28

Locations

1 site across 1 country: United States