NCT04168034

iParent2Parent Program for Parents of Children With Juvenile Idiopathic Arthritis

The iParent2Parent Program: Peer Mentoring for Parents of Children With Juvenile Idiopathic Arthritis

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 6 (actual)
• Sponsor: The Hospital for Sick Children · Academic / Other
• Sex: All
• Age: 18 Years – 100 Years
• Healthy volunteers: Not accepted

Summary

The iParent2Parent program matches parents of children living with arthritis with a trained parent mentor who will provide parents of children newly diagnosed with arthritis: practical coping advice and social support through shared lived experiences. This study will compare two groups of parents: those who are in the iParent2Parent program and those in the control group (no mentor).

Detailed description

Parents/primary caregiver of children with JIA are an often overlooked but essential member of their child's health care team. They are responsible for managing their child's treatment program, and act as advocates for their child to support positive adaptation to JIA and to learn self-management skills for the disease. This is in the context of managing the financial, logistical, emotional, and social demands of parenting in general. Within pediatric tertiary care centres, peer-support programs for parents of children with JIA are often limited or difficult to access. The iParent2Parent Program aims to fill this gap in services by offering a program of trained parent peer mentors who can provide practical coping advice, foster adaptive problem solving, and provide social support via shared lived experience.

Conditions

• JIA

Interventions

Type	Name	Description
BEHAVIORAL	iParent2Parent Program	In addition to standard care, parents in the experimental group will receive the iParent2Parent program. The iParent2Parent program is a tailored peer mentorship program that provides modeling and reinforcement by peers (trained parents of children with JIA) to parents of children diagnosed with JIA.
BEHAVIORAL	Waitlist Control	The control group will receive standard care but without the iParent2Parent program

Timeline

• Start date: 2019-08-15
• Primary completion: 2020-03-16
• Completion: 2020-03-16
• First posted: 2019-11-19
• Last updated: 2021-04-06

Locations

2 sites across 1 country: Canada