NCT04149704

Videos for Advance Care Planning in Young Adults

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 102 (actual)
• Sponsor: Dana-Farber Cancer Institute · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

This study is a randomized trial of adolescent and young adults with advanced cancer and their caregivers to assess preferences for care in advanced cancer. This research study is examining the similarities and differences between patient's and caregiver's goals of cancer care. The names of the study interventions involved in this study may include: * Questionnaires * Video * Phone Interview

Detailed description

The research study procedures include: screening for eligibility and study interventions including questionnaires and follow up visits. \- Patients and their caregivers will be randomized into the same group; either ACP video decision aid intervention or usual care. * Patients' and caregivers' knowledge, preferences (goals of care, CPR, ventilation), and decisional conflict be assessed before and after the ACP video decision aid intervention or usual care. * Participants will be in this research study for up to 3 months with only 2 study visits. * It is expected that about 100 people (50 patients and 50 caregivers) will take part in this research study.

Conditions

• Advanced Cancer

Interventions

Type	Name	Description
BEHAVIORAL	ACP video decision aid	10 minute video decision aid describing the goals-of-care options
OTHER	Usual Care-	Verbal description of the three types of care

Timeline

• Start date: 2019-12-13
• Primary completion: 2022-05-05
• Completion: 2022-05-05
• First posted: 2019-11-04
• Last updated: 2025-01-20
• Results posted: 2025-01-20

Locations

3 sites across 1 country: United States