NCT04048213

The Becoming of Children With Doose Syndrome

• Status: Unknown
• Phase: —
• Study type: Observational
• Enrollment: 50 (estimated)
• Sponsor: Centre Hospitalier Universitaire, Amiens · Academic / Other
• Sex: All
• Age: 1 Year – 6 Years
• Healthy volunteers: Not accepted

Summary

Doose syndrome is a rare epileptic syndrome that can lead to learning difficulties and a poor quality of life. The goal of this study is to evaluate the evolution of epilepsy and its consequences on cognitive development and learning issues in children with Doose syndrome.

Detailed description

Doose syndrome is a rare epileptic syndrome beginning between ages two and five, characterized by myoclonic-astatic seizures which can be associated with myoclonic seizures, astatic seizures, absences and generalized tonic-clonic seizures. These seizures can be difficult to treat effectively and may lead to learning difficulties. During this study, parents of children with Doose syndrome will receive a questionnaire regarding learning disabilities, quality of life and epilepsy of their children.

Conditions

• Doose Syndrome
• Epileptic Syndromes
• Learning Disabilities

Interventions

Type	Name	Description
OTHER	questionnaire	questionnaire send to the parents

Timeline

• Start date: 2019-08-01
• Primary completion: 2023-12-01
• Completion: 2023-12-01
• First posted: 2019-08-07
• Last updated: 2023-04-12

Locations

1 site across 1 country: France