NCT04013828

Treatment Decision-making in Patients With Recurrent High-grade Glioma

Recurrent High-grade Glioma: Experiences of Patients and Their Close Relatives During the Treatment Decision-making Process.

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 29 (actual)
• Sponsor: Odense University Hospital · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

This qualitative study explores the lived experience of high-grade glioma patients and their close relatives at time of recurrence. With focus on the decision-making about treatment and care..

Detailed description

High-Grade Glioma is a life-threatening disease that can cause the patient substantial physical, mentally and psychosocially impairment. The life expectancy is short, and a majority of patients experience recurrence of tumour growth. At time of recurrence, the treatment possibilities can include surgery, oncological treatment and/or palliative care. In this situation the patients and their close relatives need to make a difficult balancing between benefits and trade offs. Little is known about how the patients and their close relatives experience the recurrence and the decision-making process. The objective of this study is therefore to explore the perspectives, experiences and needs in patients and their close relatives in relation to the decision-making process at time of recurrence. Data will be generated through semi-structured interviews. Interviews will be analysed and interpreted using a Ricoeur inspired method of qualitative analysis. The study is part of a larger PhD-study.

Conditions

• Malignant Glioma
• Life Experiences

Timeline

• Start date: 2019-05-06
• Primary completion: 2020-04-03
• Completion: 2022-04-08
• First posted: 2019-07-10
• Last updated: 2022-04-20

Locations

2 sites across 1 country: Denmark