NCT03889041

Caregivers of Children With Repaired Esophageal Atresia-tracheoesophageal Fistula

Concerns of Caregivers of Children With Repaired Esophageal Atresia-tracheoesophageal Fistula

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 64 (actual)
• Sponsor: Hacettepe University · Academic / Other
• Sex: All
• Age: 20 Years – 50 Years
• Healthy volunteers: —

Summary

Children with esophageal atresia and tracheoesophageal fistula (EA-TEF) may experience feeding and swallowing difficulties, which result in stressful interactions between children and caregivers, and potentially impact the concerns of caregivers. The aim of this study was to assess concerns of caregivers of children with EA-TEF related to feeding-swallowing difficulties.

Detailed description

Children with repaired esophageal atresia-tracheoesophageal fistula (EA-TEF) experience some degrees of feeding and swallowing difficulties Feeding and swallowing difficulties cause aspiration-induced recurrent pneumonia, malnutrition, dehydration and stressful interactions with their caregivers. There is lack of knowledge regarding the concerns of caregivers of children with EA-TEF related to feeding and swallowing disorders.Therefore, the aim of this study was to assess concerns of caregivers of children with EA-TEF related to feeding-swallowing difficulties.

Conditions

• Dysphagia
• Quality of Life

Interventions

Type	Name	Description
OTHER	Quality of life assessment	The Turkish Feeding/Swallowing Impact Survey will be completed by the caregivers

Timeline

• Start date: 2019-04-01
• Primary completion: 2019-05-01
• Completion: 2019-05-01
• First posted: 2019-03-25
• Last updated: 2019-05-10

Locations

1 site across 1 country: Turkey (Türkiye)