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CompletedNCT03858101

SNAP: Study Nutrients in Adult PKU

An Exploratory Matched Case-control Study to Measure Blood Nutrient Levels of Adult PKU Patients on a Protein Substitute.

Status
Completed
Phase
Study type
Observational
Enrollment
71 (actual)
Sponsor
Nutricia Research · Industry
Sex
All
Age
18 Years
Healthy volunteers
Accepted

Summary

Phenylketonuria (PKU) is a rare inherited metabolic disorder, where subjects are born with a genetic deficiency in the phenylalanine hydroxylase enzyme (PAH), which leaves them unable to convert Phenylalanine (Phe) into Tyrosine (Tyr). PKU patients have specific dietary needs and must follow a restrictive diet in the aim of preventing toxic levels of the amino acid phenylalanine (Phe) accumulation.

Detailed description

The aim of this explorative cross-sectional study is to gain quantitative insights on blood nutrient levels of adult PKU patients on a protein substitute.

Conditions

Timeline

Start date
2019-04-15
Primary completion
2023-03-03
Completion
2023-05-15
First posted
2019-02-28
Last updated
2023-06-02

Locations

4 sites across 3 countries: Belgium, Denmark, Spain

Source: ClinicalTrials.gov record NCT03858101. Inclusion in this directory is not an endorsement.