NCT03806712

Comprehensive Study of Social Representation of Platelet Transfusion in Patients Followed for Advanced Hematological Malignancies (R-PLQ)

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 45 (actual)
• Sponsor: Centre Hospitalier Universitaire de Besancon · Academic / Other
• Sex: All
• Age: 18 Years – 100 Years
• Healthy volunteers: Not accepted

Summary

Limited data is available for end of life care in hematologic malignancies, moreover with thrombocytopenic patients. Thrombopenia is a frequent complication, specific of bone marrow involvement in those diseases or its treatments. Yet, a few studies was interested in, whereas platelet transfusion is the only treatment indicated. As it represent a scarce, limited resource, the ethical principles are in conflict in this setting and there's a lack of recommendation. The final decision is take by the clinician and his patient, but no study exist in representation of the two parts. We provide a qualitative study to understand what this decision is made of.

Conditions

• Platelet Transfusion
• Hematological Malignancy
• Palliative Care

Interventions

Type	Name	Description
OTHER	multi method questionary (developped by De Rosa, in 1995 and 2014)	questions from an association network according to the subject and the grounded theorise (Glasser and Strauss)

Timeline

• Start date: 2019-04-01
• Primary completion: 2019-06-01
• Completion: 2019-07-22
• First posted: 2019-01-16
• Last updated: 2019-07-25

Locations

1 site across 1 country: France