NCT03803735

Hospital Based Registry of Childhood Cancer in Pediatric Oncology Units in French Speaking Africa

French African Pediatric Oncology Registry

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 10,000 (estimated)
• Sponsor: French Africa Pediatric Oncology Group · Academic / Other
• Sex: All
• Age: 1 Day – 18 Years
• Healthy volunteers: —

Summary

The ultimate aim of this registry is to collect precise information concerning the children coming to oncology units working with the French African Oncology Group. This data will help to plan and provide correct pediatric oncology treatment and care for this population. Collecting the data will give much needed information on numbers, stage, treatment and outcome. The register will give data for local and national health authorities in planning pediatric cancer programs.

Detailed description

This register is a registration of all children entering hospital based pediatric oncology units, working in selected hospitals in French speaking Africa. The data collected includes: demographic and socioeconomic status as well as clinical status and outcome. The register also collects information on vital status, treatment abandonment and loss to follow-up. Data, collected locally is entered on line using the Research Electronic Data Capture (REDCap) program. Data are stored under the responsibility of the IT department at Gustave ROUSSY in Paris- Villejuif.

Conditions

• Pediatric Cancer

Timeline

• Start date: 2016-01-01
• Primary completion: 2030-12-01
• Completion: 2030-12-01
• First posted: 2019-01-15
• Last updated: 2025-10-03

Locations

14 sites across 12 countries: Burkina Faso, Cameroon, Côte d’Ivoire, Democratic Republic of the Congo, France, Gabon, Madagascar, Mali, Mauritania, Niger, Senegal, Togo