Trials / Completed
CompletedNCT03800992
Bad News- Diagnosis: Epilepsy in Childhood
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 33 (actual)
- Sponsor
- University Hospital, Basel, Switzerland · Academic / Other
- Sex
- All
- Age
- 3 Months – 18 Years
- Healthy volunteers
- Not accepted
Summary
"Bad news" are defined as"any information which adversely and seriously affects an individuals' view of future. Families of chronic ill children are exposed to a high stress load. This project is to investigate the stress burden directly after diagnosis of epilepsy in childhood and coping capabilities in the course of time and how quality of communication at the time of diagnosis effects stress perception and coping behaviour in the following 12 months. Perceived/ experienced advisory skills of the physician will be assessed by parents and children (older than eleven) on the basis of SPIKES - a Six-Step Protocol for Delivering Bad News. The subjective perception regarding quality of dialogue in relationship to childrens and their parents quality of life and their coping strategies will be assessed.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | assessment of perception and evaluation of physicians advisory skills per questionnaire | questionnaire according to SPIKES - a Six-Step Protocol for Delivering Bad News to be completed by parents and children (older than eleven) |
Timeline
- Start date
- 2019-04-30
- Primary completion
- 2021-12-28
- Completion
- 2021-12-28
- First posted
- 2019-01-11
- Last updated
- 2022-09-14
Locations
1 site across 1 country: Switzerland
Source: ClinicalTrials.gov record NCT03800992. Inclusion in this directory is not an endorsement.