Trials / Recruiting
RecruitingNCT03749980
MyVHL: Patient Natural History Study
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 10,000 (estimated)
- Sponsor
- Joshua Mann, MPH · Academic / Other
- Sex
- All
- Age
- —
- Healthy volunteers
- Accepted
Summary
MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle, medications, and other factors impact the disease and quality of life. These insights help you better understand the condition and help researchers know where to focus their efforts. Due to its rarity, there is less understanding of VHL and the factors that may have an impact. The data individuals provide in MyVHL helps researchers identify and uncover factors that may increase risk, inhibit or slow tumor growth, or lead to an effective cure.
Conditions
- Von Hippel-Lindau Disease
- Hereditary Leiomyomatosis and Renal Cell Cancer
- Birt-Hogg-Dube Syndrome
- SDHB Gene Mutation
Timeline
- Start date
- 2012-01-01
- Primary completion
- 2028-12-01
- Completion
- 2028-12-01
- First posted
- 2018-11-21
- Last updated
- 2024-04-26
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT03749980. Inclusion in this directory is not an endorsement.