Trials / Completed
CompletedNCT03720028
Angelman & Rett Syndrome: Interaction and Communication
Parent-child Interaction and Communication in Families Who Have a Child With Rett Syndrome or Angelman Syndrome
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 20 (actual)
- Sponsor
- Universitaire Ziekenhuizen KU Leuven · Academic / Other
- Sex
- All
- Age
- 1 Year – 14 Years
- Healthy volunteers
- Not accepted
Summary
We aim to describe the communicative and sensory profile of children with Angelman syndrome or Rett syndrome and their use of augmentative and alternative communication. In addition, parents are surveyed regarding parent-child interaction and access to communication support.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| BEHAVIORAL | Observation | Describe communication and sensory profile using standardized tests and observations. |
| BEHAVIORAL | Parental experiences | Survey parents' experiences with parent-child interaction and augmentative and alternative communication. |
Timeline
- Start date
- 2018-12-01
- Primary completion
- 2019-10-01
- Completion
- 2020-07-01
- First posted
- 2018-10-25
- Last updated
- 2020-12-21
Locations
1 site across 1 country: Belgium
Source: ClinicalTrials.gov record NCT03720028. Inclusion in this directory is not an endorsement.