NCT03697434

Acceptability of Palliative Care in Parkinson Disease Care

Pilot to Assess the Acceptance of Palliative Care Referral Among Those With Parkinson Disease

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 20 (actual)
• Sponsor: University of Rochester · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

This study will assess the feasibility of using specific criteria to standardize the referral of individuals with Parkinson disease to a group of medical providers known as palliative care specialists. Palliative care specialists provide supportive care to individuals living with serious illnesses. The specialty focuses on providing relief from the symptoms and stress of serious illness.

Conditions

• Parkinson Disease

Interventions

Type	Name	Description
BEHAVIORAL	Palliative Care referral	Individuals with Parkinson disease identified as having specific uncontrolled symptoms or critical events will undergo standardized referral to palliative care, who will provide supportive care. During the palliative care referral, participants and their care partners may discuss symptoms, disease burden (physical, emotion, financial, and psychological), quality of life, goals of care, and advance directive completion. Palliative care specialists may recommend interventions to manage bothersome symptoms or to improve disease burden for both participants and care partners.

Timeline

• Start date: 2018-11-16
• Primary completion: 2019-06-01
• Completion: 2019-06-02
• First posted: 2018-10-05
• Last updated: 2019-12-09

Locations

1 site across 1 country: United States