NCT03533049

mHealth Family Self-Management

mHealth Family Self-Management Intervention for Parents of Transplanted Children

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 67 (actual)
• Sponsor: Medical College of Wisconsin · Academic / Other
• Sex: All
• Age: 100 Years
• Healthy volunteers: Not accepted

Summary

This innovative research will address a gap in the literature involving the evaluation of the impact of an individualized family-centered mHealth application to enhance daily post-discharge communication following pediatric transplant. This proposal lays the foundation for future research with myFAMI (self-management intervention) at multiple pediatric transplant centers and builds the science from which to consider post discharge monitoring and decrease cost of care in other pediatric chronic illness populations.

Conditions

• Transplantation
• Pediatric ALL

Interventions

Type	Name	Description
OTHER	myFAMI	Patients who are assigned to the myFAMI group will also have the smartphone application downloaded onto either the family member's smartphone or a study-provided smartphone. Following discharge from the hospital, participants will use the smartphone application to answer nine daily questions regarding tracking family coping, transplant symptoms, family management of child transplant symptoms, and family-management difficulty with medication and follow-up regimen daily for the first 30 days following discharge.

Timeline

• Start date: 2018-10-01
• Primary completion: 2020-04-01
• Completion: 2020-05-01
• First posted: 2018-05-22
• Last updated: 2020-07-09

Locations

1 site across 1 country: United States