NCT03406208

Resiliency Training for Adults With Neurofibromatosis Via Live Videoconferencing

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 228 (actual)
• Sponsor: Massachusetts General Hospital · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The aims of this study are to compare the effect and durability of two stress and symptom management programs tailored for patients with neurofibromatosis on quality of life and psychosocial functioning.

Detailed description

The aims of this study are to compare the effect of two stress and symptom management programs tailored for patients with neurofibromatosis on quality of life and psychosocial functioning. We will also examine the degree to which treatment-dependent improvements in quality of life are mediated by improvements in depression, anxiety, distress, mindfulness, gratitude, social support, empathy, optimism, coping, pain intensity and pain interference.

Conditions

• Neurofibromatoses
• Neurofibromatosis 1
• Neurofibromatosis 2
• Schwannomatosis

Interventions

Type	Name	Description
BEHAVIORAL	Stress and Symptom Management Program 1	The Stress and Symptom Management Program 1 (SMP1) introduces and reinforces stress and symptom management skills. The program consists of 8 weekly sessions (90 minutes each), delivered through live videoconferencing.
BEHAVIORAL	Stress and Symptom Management Program 2	The Stress and Symptom Management Program 2 (SMP2) introduces and reinforces stress and symptom management skills. The program consists of 8 weekly sessions (90 minutes each), delivered through live videoconferencing.

Timeline

• Start date: 2017-10-01
• Primary completion: 2022-02-28
• Completion: 2022-02-28
• First posted: 2018-01-23
• Last updated: 2025-12-24

Locations

1 site across 1 country: United States