NCT03380351

Specifying Interventions From the Sickle Cell Disease Implementation Consortium (SCDIC)

The Implementation of Cognitive Screening and Educational Support to Improve Outcomes of Adolescents and Young Adults With Sickle Cell Disease: From Clinic to the Community and Back

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 17 (actual)
• Sponsor: Washington University School of Medicine · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

The goal of this study is to specify the interventions, implementation strategies and control conditions from the Sickle Cell Disease Implementation Consortium (SCDIC) using a mixed-methods approach to study site materials and conduct semi-structured qualitative interviews with site representatives (N=3 per site). We focused on the Emergency Department Working Group from the SCDIC working groups.

Detailed description

The long-term goal of this line of research is to identify the most effective components of SCD interventions while also identifying effective implementation strategies informed by a systematic and rigorous work done by the members of the SCDIC consortium to improve the quality of life of people with SCD, a life-threatening hematological disorder. This study aims to collect detailed information about the planned interventions, the implementation strategies and the control conditions from each site.

Conditions

• Anemia, Sickle Cell

Interventions

Type	Name	Description
BEHAVIORAL	SCDIC interventions	The research team will characterize the intervention components and their implementation strategies.

Timeline

• Start date: 2019-08-26
• Primary completion: 2024-03-01
• Completion: 2024-03-30
• First posted: 2017-12-21
• Last updated: 2024-05-08

Locations

1 site across 1 country: United States