NCT03323411

End-of-life Intervention for African American Dementia Caregivers

Community-based End-of-Life Intervention for African American Dementia Caregivers

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 355 (actual)
• Sponsor: University of Illinois at Chicago · Academic / Other
• Sex: All
• Age: —
• Healthy volunteers: Accepted

Summary

In a community-based approach, the investigators long-term goal is to empower African American family caregivers who are designated healthcare proxies to make informed end-of-life treatment decisions for participants with moderate to severe dementia before a life-threatening medical crisis occurs.

Detailed description

The investigators conducted a randomized controlled trial for efficacy of the Advance Care Treatment Program in an African American church-based community model. The investigators compared the effect of the experimental and control groups on knowledge, self-efficacy, intentions and behaviors from 4 urban African American churches randomly assigned to experimental (n=2) or control (n=2) conditions,304 (experimental n=152; control (n=152) health care proxies of participants that have advanced stage dementia: (a) were concurrently recruited in small classes each with 8-9 healthcare proxies.

Conditions

• Encephalopathy, Ischemic

Interventions

Type	Name	Description
BEHAVIORAL	Advance Care Treatment Plan	subjects in experimental group are taught information on dementia mechanical ventilation tube feeding and cardiopulmonary resuscitation

Timeline

• Start date: 2013-08-15
• Primary completion: 2016-09-10
• Completion: 2019-05-31
• First posted: 2017-10-27
• Last updated: 2019-12-10