NCT03139526

Social Participation After Childhood Craniopharyngioma

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 20 (actual)
• Sponsor: BERTHILLIER Julien · Academic / Other
• Sex: All
• Age: 1 Day – 18 Years
• Healthy volunteers: Not accepted

Summary

Craniopharyngioma is a rare, benign central nervous system tumor, which may be a source of multiple complications, from endocrinology to vision, neurology and neurocognitive functions. This morbidity can lead to reduced participation in life activities, as described in the International Classification of Functioning, Disability, and Health (ICF). The primary objective of this study is to measure participation in life activities in a population of children affected by childhood craniopharyngioma, using the assessement of life habits questionnaire (LIFE-H questionnaire), validated as a social participation measurement tool in various pediatric disabilities.

Conditions

• Children With a Craniopharyngioma

Interventions

Type	Name	Description
OTHER	observational study so no intervention	observational study, so no intervention

Timeline

• Start date: 2014-01-01
• Primary completion: 2014-07-01
• Completion: 2014-07-01
• First posted: 2017-05-04
• Last updated: 2017-05-08