NCT03118609

Understanding Needs

Understanding the Needs of Informal Caregivers

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 69 (actual)
• Sponsor: Colorado State University · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

The "Understanding Needs" Project is designed to gain an understanding of the needs of informal caregivers. Researchers have designed a survey to highlight activities of daily living involved in the caregiving role, pain related to caregiver, and potential services desired. The initial phase of the study will consist of a focus group of informal caregivers to discuss current needs. The survey will then be refined based on knowledge gained from the focus group, and feedback from expert researchers. The refined survey will then be disseminated to caregivers throughout the country. Please click on the following anonymous link to participate: https://chhscolostate.co1.qualtrics.com/jfe/form/SV\_54j83BQSItMuoUB

Detailed description

The "Understanding Needs" Project highlights the needs of informal caregivers. An informal caregiver is defined as a person who regularly provides unpaid care to another adult. The survey will ask about pain intensity, pain interference, and relation of pain to the caregiving role. The survey will also address which activities the caregiver assists with, and activities now lacking since becoming a caregiver. One focus group will be completed to refine the contents of the survey prior to dissemination. The results will be analyzed by an occupational therapist, with a focus on how pain may connect to assistance with daily living activities provided to the care recipient. The needs of caregivers within the community will be compiled to inform future involvement in remediation of needs.

Conditions

• Caregivers

Interventions

Type	Name	Description
OTHER	Understanding Needs Survey	2-hour Focus Group Mailed or E-mailed Survey

Timeline

• Start date: 2017-04-12
• Primary completion: 2019-01-16
• Completion: 2019-01-16
• First posted: 2017-04-18
• Last updated: 2019-07-23

Locations

1 site across 1 country: United States