NCT02928757

Complex Care for Kids Ontario (CCKO)

Complex Care for Kids Ontario (CCKO): A Patient- and Family-centred Implementation and Evaluation of Care Coordination for Children With Medical Complexity

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 160 (actual)
• Sponsor: The Hospital for Sick Children · Academic / Other
• Sex: All
• Age: 0 Years – 16 Years
• Healthy volunteers: Not accepted

Summary

There are \~6,200 children in Ontario with special and complex healthcare needs requiring multiple services from many different doctors and other healthcare providers. These children are at a high risk of missed, duplicated or inappropriate care, and extraordinary financial burden and stress on families. While small in number (\<1% of Ontario kids), these children use 1/3 of all child healthcare resources, and are known to desperately need coordinated care to optimize their health. Complex Care Kids Ontario (CCKO) brings together researchers, children and families, and healthcare providers from across Ontario to develop, implement and evaluate an evidence-based and coordinated model of care for every child with medical complexity in Ontario.

Conditions

• Children With Medical Complexity

Interventions

Type	Name	Description
OTHER	Complex care clinic as part of the CCKO initiative	The CCKO intervention involves intensive care coordination, defined as: "deliberate organization of patient care activities between two or more participants (including the patient) involved in a patient's care to facilitate the appropriate delivery of health care services. Organizing care involves marshaling of personnel and other resources needed to carry out all required patient care activities and is often managed by the exchange of information among participants responsible for different aspects of care". Within CCKO, intensive care coordination will specifically include: 1) the tailored, family/health care provider co-creation and regular updating of care coordination plans for each child which will be 2) facilitated and accounted for by key workers partnering with families.

Timeline

• Start date: 2016-12-01
• Primary completion: 2021-01-01
• Completion: 2021-05-01
• First posted: 2016-10-10
• Last updated: 2022-09-08

Locations

4 sites across 1 country: Canada