NCT02911090

Endometriosis Pelvic Pain Interdisciplinary Cohort Data Registry

Endometriosis Pelvic Pain Interdisciplinary Cohort (EPPIC) Data Registry

• Status: Enrolling By Invitation
• Phase: —
• Study type: Observational
• Enrollment: 5,000 (estimated)
• Sponsor: BC Women's Hospital & Health Centre · Academic / Other
• Sex: Female
• Age: —
• Healthy volunteers: Not accepted

Summary

The purpose of this data registry is to prospectively collect data from patients referred to an interdisciplinary clinic for pelvic pain and endometriosis to investigate long-term patient outcomes, prognosis, predictors, causes, and treatment of pelvic pain and endometriosis.

Detailed description

The BC Women's Centre for Pelvic Pain and Endometriosis is the tertiary referral centre for endometriosis/pelvic pain in British Columbia, Canada. The Centre offers a unique interdisciplinary approach including minimally invasive surgery, hormonal and other medical therapy, pain education, physiotherapy, and CBT/mindfulness. After informed consent, patients prospectively consent to data collection in the online registry. The registry consists of patient intake questionnaires (including validated measures), physical and ultrasound examination, review of medical records, surgical findings, and annual outcomes to 5 years. The online data registry is housed in the Research Electronic Data Capture (REDCap) platform located at BC Children's Hospital.

Conditions

• Endometriosis

Interventions

Type	Name	Description
OTHER	Data Registry	Data Registry

Timeline

• Start date: 2016-06-01
• Primary completion: 2028-12-01
• Completion: 2028-12-01
• First posted: 2016-09-22
• Last updated: 2024-08-07

Locations

1 site across 1 country: Canada