Trials / Recruiting
RecruitingNCT02808858
Italian Network MDS Registry
Rete Italiana Dei Registri Regionali Delle Sindromi Mielodisplastiche (MDS)
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 10,000 (estimated)
- Sponsor
- Fondazione Italiana Sindromi Mielodisplastiche-ETS · Academic / Other
- Sex
- All
- Age
- 18 Years – 106 Years
- Healthy volunteers
- Not accepted
Summary
Epidemiological data collection of adult patients affected by myelodysplastic syndrome (MDS) newly diagnosed.
Detailed description
Development of an Italian regional registries MDS network using the same electronic case report form for data storage, with the following broad aims: * Ability to aggregate and process anonymous epidemiological data collected by individual regional registers; * Ability to aggregate the available data with those of other international registries existing.
Conditions
Timeline
- Start date
- 2013-09-01
- Primary completion
- 2016-06-01
- Completion
- 2032-05-01
- First posted
- 2016-06-22
- Last updated
- 2025-03-04
Locations
20 sites across 1 country: Italy
Source: ClinicalTrials.gov record NCT02808858. Inclusion in this directory is not an endorsement.