Trials / Completed
CompletedNCT02574676
Quality of Life (QOL) Registry for Patients With AL Amyloidosis
Prospective Observational Study Measuring the Short-Form36 ( SF-36v2) and Other QOL Tools in an AL Amyloidosis Population
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 343 (actual)
- Sponsor
- Prothena Biosciences Ltd. · Industry
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
This is an online registry to document the psychometric properties of SF-36v2 among patients with AL Amyloidosis, to document patients' burden of disease, to better understand the patient's experience and to follow quality of life issues using a variety of QOL measures.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | non-interventional |
Timeline
- Start date
- 2015-10-01
- Primary completion
- 2018-07-01
- Completion
- 2018-07-01
- First posted
- 2015-10-14
- Last updated
- 2019-04-09
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT02574676. Inclusion in this directory is not an endorsement.