NCT02124395

Health-related Quality of Life in Rare Kidney Stone

Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 365 (actual)
• Sponsor: NYU Langone Health · Academic / Other
• Sex: All
• Age: 5 Years
• Healthy volunteers: Not accepted

Summary

Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium

Detailed description

The purpose of this study is to learn about Health-related Quality Of Life (HRQoL) in patients enrolled in the Rare Kidney Stone Consortium (RKSC) registries. Quality of life studies look at different aspects of both physical and mental components of people's lives. HRQoL data for people affected by kidney stones are not currently available for people followed over time.

Conditions

• Primary Hyperoxaluria
• Cystinuria
• Adenine Phosphoribosyl Transferase Deficiency
• Dent Disease

Interventions

Type	Name	Description
OTHER	Health-related Quality of Life in Rare Kidney Stone Questionnaire

Timeline

• Start date: 2013-08-01
• Primary completion: 2022-07-01
• Completion: 2022-07-01
• First posted: 2014-04-28
• Last updated: 2022-09-02

Locations

3 sites across 2 countries: United States, Iceland