NCT02068651

A Community-based Advance Care Planning Programme for Patients With Advanced Disease

A Community-based Advance Care Planning Programme to Improve End-of-life Care in Patients With Advanced Disease: A Mixed-method Approach

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 239 (actual)
• Sponsor: Food and Health Bureau, Hong Kong · Other Government
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

Advance care planning has been recommended as an integral part of care for patients with life-limiting disease, but relevant development in Hong Kong is still in its infancy. This proposed study attempts to address this service gap by promoting advance care planning to patients with advanced disease. It is hypothesized that the proportion of patients whose end-of-life care preferences were known in the experimental group will be significantly higher than that in the control group.

Detailed description

This study aims to evaluate the impacts of a community-based advance care planning programme on end-of-life care of patients with advanced disease. A mixed-method approach, including a randomized controlled trial and qualitative interviews, will be used. Participants in the experimental group will received a structured advance care planning programme delivered by a trained facilitator. It includes an educational component, reflection and a family meeting.

Conditions

• Chronic Disease

Interventions

Type	Name	Description
BEHAVIORAL	Advance care planning programme	It is a multi-faceted programme which includes an educational component with support of multimedia materials, reflection on personal values and a facilitated discussion between patient and family carer over future care. It will be delivered to each pair of participant and family carer on individual basis. By the end of the programme, each participant will have a personal workbook summarising the advance care planning process for record.

Timeline

• Start date: 2014-03-01
• Primary completion: 2016-03-01
• Completion: 2016-03-01
• First posted: 2014-02-21
• Last updated: 2016-08-19

Locations

1 site across 1 country: Hong Kong