Clinical Trials Directory

Trials / Completed

CompletedNCT01965912

Kuvan®'s Effect on the Cognition of Children With Phenylketonuria

A Phase 4 Open-Label, Single-Cohort Study of the Long-Term Neurocognitive Outcomes in 4 to 5 Year-Old Children With Phenylketonuria Treated With Sapropterin Dihydrochloride (Kuvan®) for 7 Years

Status
Completed
Phase
Phase 4
Study type
Interventional
Enrollment
34 (actual)
Sponsor
BioMarin Pharmaceutical · Industry
Sex
All
Age
4 Years – 5 Years
Healthy volunteers
Not accepted

Summary

The study is a single-cohort, interventional, open-label trial to evaluate long-term neurocognitive (NC) outcomes in children aged 4 to 5 years with phenylketonuria (PKU) treated with Kuvan® and Phenylalanine-restricted diet over a period of 7 years.

Conditions

Interventions

TypeNameDescription
DRUGKuvan®Kuvan® oral soluble tablet will be administered once daily along with Phenylalanine-restricted diet for a period of 7 years. Dosage of Kuvan® could range from 5 to 20 milligram per kilogram per day (mg/kg/day), as per Summary of Product Characteristics (SPC).

Timeline

Start date
2013-10-01
Primary completion
2023-01-04
Completion
2023-01-04
First posted
2013-10-18
Last updated
2023-04-24

Locations

12 sites across 4 countries: Germany, Italy, Spain, United Kingdom

Source: ClinicalTrials.gov record NCT01965912. Inclusion in this directory is not an endorsement.