Clinical Trials Directory

Trials / Completed

CompletedNCT01758354

Newborn Screening Assay of Pompe's Disease

Status
Completed
Phase
N/A
Study type
Interventional
Enrollment
236,536 (actual)
Sponsor
National Taiwan University Hospital · Academic / Other
Sex
All
Age
Healthy volunteers
Accepted

Summary

The purpose of this study is to test the feasibility of a newborn screen assay for Pompe disease

Detailed description

DBS from newborn will be tested for acid alpha-glucosidase (GAA) activity. Babies with low GAA activity will be confirmed for Pompe disease.

Conditions

Interventions

TypeNameDescription
OTHERPompe disease newborn screeningDBS will be tested for acid alpha-glucosidase (GAA)activity. Newborns with low GAA activity will received a confirmatory blood sampling and clinical evaluation for the presence of cardiomyopathy.

Timeline

Start date
2005-09-01
Primary completion
2009-12-01
Completion
2009-12-01
First posted
2013-01-01
Last updated
2013-01-01

Locations

1 site across 1 country: Taiwan

Source: ClinicalTrials.gov record NCT01758354. Inclusion in this directory is not an endorsement.