NCT01130220

Study of the Health Information Needs of Brain Cancer Patients

Informed Brain Cancer Patients

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 27 (actual)
• Sponsor: University of Florida · Academic / Other
• Sex: All
• Age: 18 Years – 89 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.

Detailed description

A mere subset of the reasons behind unmet health care literacy needs include the health care systems' increasing complexity, increased time constraints, profound treatment decision making requirements, decreased financial resources, fracturing social networks and diversifying educational and cultural needs. This project will use focus groups to explore the factors involved in brain cancer health care literacy from the perspectives of patients and those involved in their care. Hypothesis generated from this project will be directly applied toward future projects. The overarching goals are improved access and adequacy of health care literacy information through the eventual development of validated, useful, reliable health care literacy information tools for brain cancer patients and those involved in their care.

Conditions

• Brain Tumor

Interventions

Type	Name	Description
OTHER	Focus Group	A single focus group will be held until a "saturation" of themes has been identified.

Timeline

• Start date: 2010-05-01
• Primary completion: 2011-12-01
• Completion: 2011-12-01
• First posted: 2010-05-25
• Last updated: 2012-07-25

Locations

1 site across 1 country: United States