Trials / Unknown
UnknownNCT01123694
Xeroderma Pigmentosum Patient Experiences
Xeroderma Pigmentosum: A Survey of Patient Experiences
- Status
- Unknown
- Phase
- —
- Study type
- Observational
- Enrollment
- 15 (estimated)
- Sponsor
- Henry Ford Health System · Academic / Other
- Sex
- All
- Age
- —
- Healthy volunteers
- Not accepted
Summary
Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | Survey Study | Survey regarding quality of life |
Timeline
- Start date
- 2009-07-01
- Primary completion
- 2010-07-01
- Completion
- 2010-07-01
- First posted
- 2010-05-14
- Last updated
- 2010-05-14
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT01123694. Inclusion in this directory is not an endorsement.