NCT01073735

Investigating the Needs of Childhood Cancer Survivors: The Unreported Experience

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 1,178 (actual)
• Sponsor: St. Jude Children's Research Hospital · Academic / Other
• Sex: All
• Age: 25 Years
• Healthy volunteers: Not accepted

Summary

This feasibility study will determine the psychometric adequacy of a newly developed instrument - Childhood Cancer Survivor Study Needs Assessment Questionnaire (CCSS-NAQ). Additionally, the study will explore the feasibility of selected study methods -- sample selection, length of time to complete recruitment, and response rates - in order to inform a larger national periodic survey of adult survivors' health related needs

Detailed description

This study will focus on the following primary and secondary objectives: 1. Examine the construct validity, short-term stability, internal consistency and item-response performance of a health-related needs assessment self-report instrument for adult childhood cancer survivors 2. Inform future sample stratification by over-sampling minority and rural-dwelling survivors to enhance the heterogeneity of the respondent pool; 3. Describe the met and unmet health-related needs and their covariates in a large, stratified, random sample of childhood cancer survivors; 4. Evaluate the sample selection methods, length of time to complete recruitment, and response rates in the study sample.

Conditions

• Childhood Cancer

Timeline

• Start date: 2010-04-01
• Primary completion: 2011-12-01
• Completion: 2011-12-01
• First posted: 2010-02-23
• Last updated: 2012-02-09

Locations

1 site across 1 country: United States