NCT00734942

Development and Implementation of Evidence-Based Family-Oriented Support for Young Carers and Their Families in Germany

Improved Health-Related Quality of Life for Young Carers and Their Families in Germany on the Basis of Evidence-Based Family-Oriented Support

• Status: Unknown
• Phase: N/A
• Study type: Interventional
• Enrollment: 150 (estimated)
• Sponsor: University of Witten/Herdecke · Academic / Other
• Sex: All
• Age: 8 Years – 18 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this study is to develop and implement evidence-based and family-oriented support for young carers and their families in Germany. Hypothesis is that families' own support mechanisms, combined with externally provided support that is determined by the families' specific needs, will help to overcome their burden and enable families to live in the way they wish to despite chronic illness. This will lead to a measurable increase in HRQOL of children concerned.

Conditions

• Chronic Illness

Interventions

Type	Name	Description
OTHER	support service	* professional partners for communication * befriending with other families concerned * information and education (about illness, symptoms, first aid, caring) * free-time activities and time out * homework assistance * administrative advise * support for everyday life

Timeline

• Start date: 2009-01-01
• Primary completion: 2009-12-01
• Completion: 2010-03-01
• First posted: 2008-08-14
• Last updated: 2008-12-23

Locations

1 site across 1 country: Germany